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  #1  
Old 25th March 2004, 09:35 PM
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Ohhhhh so sad

Dont want to bore you wth the details but just need to say. Watching this prodram on telly channel 4 and i swear, am in tears. Such a strong person who has suffered so much, has a rare skin disorder. Not sure if anyone has or s watching it The Boy Who's Skin Fell Off. God Bless Him xx

Pw x Sorry just had to say
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  #2  
Old 25th March 2004, 09:45 PM
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Quote:
Originally Posted by princesswarrior
Dont want to bore you wth the details but just need to say. Watching this prodram on telly channel 4 and i swear, am in tears. Such a strong person who has suffered so much, has a rare skin disorder. Not sure if anyone has or s watching it The Boy Who's Skin Fell Off. God Bless Him xx

Pw x Sorry just had to say
I cant believe how strong he is!

This guy is seriously funny, how on earth he can be so strong, i know if i was in his situation i would be a complete utter mess

Respect to this lad, in a big way
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  #3  
Old 25th March 2004, 09:52 PM
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I've just turned onto that now and I never knew that this condition existed!

Its awful!. People (including myself) do too much complaining about their lives but when you look at other people.......you see how lucky we are.
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  #4  
Old 25th March 2004, 09:53 PM
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Cant believe what an amazng little fella he is. Sat here bits honestly. Ur right hun what a character. The baked beans tin.

Pw xx
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  #5  
Old 25th March 2004, 09:55 PM
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Can you ever imagine having to choose your own coffin

That guy needs a bravery award of serious calibur
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  #6  
Old 25th March 2004, 09:58 PM
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No hun, i couldnt but i wished i was half as strong as he was. Didnt want to watch it cause i new what it would be like but all sad now.

Pw x
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  #7  
Old 25th March 2004, 10:01 PM
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I've just had a good cry watching that too, laughed my ass off for the first part though, how funny was he!!!!!!!!!

Now that's one of the most amazing people i've ever seen, proper touched me did that.
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Old 25th March 2004, 10:07 PM
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I no what you mean hun such an amazing fella bless him, had me laughing aswell wth m messenger. He new what he wanted at the end though i do admire him xxx

Pw x
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Old 25th March 2004, 10:08 PM
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Wish I'd watched this now, sound like a great kid It's great when kids can have so many problems and just rise above it and get on with things.
Didn't watch it coz I thought it would be a bit upsetting. It hurts me seeing my little lad when he's poorly Just a big softie. Just puts things into perspective when we think we have it bad, something to keep in mind aint it!
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Old 25th March 2004, 10:09 PM
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Quote:
Originally Posted by walshy
Wish I'd watched this now, sound like a great kid It's great when kids can have so many problems and just rise above it and get on with things.
Didn't watch it coz I thought it would be a bit upsetting. It hurts me seeing my little lad when he's poorly Just a big softie. Just puts things into perspective when we think we have it bad, something to keep in mind aint it!
He was 36!!!!!!!!!!!!!!!!!

I know what you mean though.
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  #11  
Old 25th March 2004, 10:13 PM
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Ye 36 but never reached puberty. You never think of how lucky we all are until something like this. If it was me i would not have had the will to carry onx
Pw x
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  #12  
Old 25th March 2004, 10:16 PM
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Doh! like I said I just saw the Boy who's skin fell off. But you know where I'm comin from. All these rare conditions that come to light are weird. I remember a little girl who couldn't be in the sunlight and had to wear a spaceman suit to playout but she never let it get to her either, I'm sure I couldn't handle stuff like that. Makes me feel quite shallow seeing stuff like this.
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  #13  
Old 25th March 2004, 10:18 PM
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Not shallow hun, why should it make you shallow.

Pw
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  #14  
Old 25th March 2004, 10:20 PM
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Quote:
Originally Posted by walshy
Doh! like I said I just saw the Boy who's skin fell off. But you know where I'm comin from. All these rare conditions that come to light are weird. I remember a little girl who couldn't be in the sunlight and had to wear a spaceman suit to playout but she never let it get to her either, I'm sure I couldn't handle stuff like that. Makes me feel quite shallow seeing stuff like this.
I remember that, i know what you mean though, i was a bit worried when i started watching it but the guy was so funny and so amazing it was actually ok to watch, just a bit tearfull at the end when he died.

I went and gave my boy a big hug and kiss at every ad break though, makes you think how lucky you are, we all moan but in the big picture we're all sooooo lucky.
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  #15  
Old 25th March 2004, 10:22 PM
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Quote:
Originally Posted by Shabba
I remember that, i know what you mean though, i was a bit worried when i started watching it but the guy was so funny and so amazing it was actually ok to watch, just a bit tearfull at the end when he died.

I went and gave my boy a big hug and kiss at every ad break though, makes you think how lucky you are, we all moan but in the big picture we're all sooooo lucky.
Yes indeed we r hun

Pw x
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